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Hypoplastic Left Heart Syndrome (HLHS)


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Web SiteCongenital Heart Information Network
The Congenital Heart Information Network's goal is to provide information and resources to families of children with congenital and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.

OrganizationAmerican Heart Association
This group is dedicated to providing education and information on fighting heart disease and stroke.

OrganizationNational Heart, Lung, and Blood Institute (NHLBI)
The NHLBI provides the public with educational resources relating to the treatment of heart, blood vessel, lung, and blood diseases as well as sleep disorders.

Web SiteUnited Network for Organ Sharing
This national group determines who will get donated organs, and when. Organs are assigned based on how sick a person is and how quickly the person needs the organ.

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